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Have You Or Someone You Know Experienced Adrenal Crises Related To CAH? How Did You Or Your Family Respond?

A CAHteam Subscriber asked a question 💭
September 12, 2024
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An adrenal crisis is a life-threatening emergency that occurs when the body doesn't produce enough cortisol. For people with CAH, this is particularly dangerous as their adrenal glands already struggle with hormone production. Key symptoms include:

- Severe weakness
- Nausea, vomiting, and abdominal pain
- Dizziness or Show Full Answer

An adrenal crisis is a life-threatening emergency that occurs when the body doesn't produce enough cortisol. For people with CAH, this is particularly dangerous as their adrenal glands already struggle with hormone production. Key symptoms include:

- Severe weakness
- Nausea, vomiting, and abdominal pain
- Dizziness or confusion
- Low blood pressure
- Dehydration
- Pain in legs, arms, or back If you experience these symptoms, immediate medical attention is required. To prevent crises:

1. Always wear a medical alert bracelet
2. Practice "stress dosing" - taking extra hydrocortisone during times of illness, injury, or stress
3. Never skip or stop medications without medical supervision
4. Be especially careful during illnesses, surgeries, or high-stress situations
5. Work closely with an endocrinologist for proper monitoring

The mortality rate is about 0.5% per year, making prevention and quick response crucial for survival.

May 29

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