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Do people with non-salt-wasting CAH still have abnormal adrenal labs?

Yes, people with non-salt-wasting CAH (also called simple virilizing CAH) can definitely have adrenal issues and abnormal labs. While this form doesn't typically involve the severe salt-wasting problems, the adrenal glands still produce too many Show Full Answer

Do people with non-salt-wasting CAH still have abnormal adrenal labs?

Yes, people with non-salt-wasting CAH (also called simple virilizing CAH) can definitely have adrenal issues and abnormal labs. While this form doesn't typically involve the severe salt-wasting problems, the adrenal glands still produce too many androgens and not enough cortisol.

Your situation sounds particularly complex with low ACTH, normal cortisol, and extremely low aldosterone. That combination is unusual for typical non-salt-wasting CAH, where aldosterone levels are usually closer to normal.

It's good you're seeing an endocrinologist in March. They'll likely want to:
* Review your lab patterns over time
* Check if your results vary when you're healthy versus ill
* Possibly order additional hormone testing
* Determine if your specific enzyme deficiency is causing unexpected patterns

CAHteam members have shared that lab results can sometimes be confusing or not fit the "textbook" presentation, especially with rarer enzyme deficiencies like 3β-HSD. Your doctor will help figure out what's happening with your specific hormone levels and whether treatment adjustments might help.

 AI-generated responses are not a substitute for medical advice. These services are not intended to diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.

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