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I stopped taking hydrocortisone when I was 17. I told my Drs it was giving me roid rage, only to hear them tell me it was all in my head and if I didn't take it I would die. Well 30 some odd years later here I am. I was just wondering if there was anyone else that isn't on meds. As far as I know I'm the only bearded female I've ever seen.
Yes it makes me want to snap for no reason.
Does it make you want to rip someone's head off without a second thought?
I am taking hydrocortisone as well
Também acho que vc deveria se tratar,aqui no Brasil ainda não existe tratamento com as nova medicação, eu passo mal quando tomo 5 mg de hidrocortisona, acordava com o coração acelerado quase infartando,o nível do cortisol alto 33,não sei porque, eu parei de tomar fiquei melhor, pedi ajuda por causa do meu cabelo caindo,diz que o hormônio testosterona (119 no último exames)faz cair o cabelo. Também tenho 52 anos, nível do cortisol sem medicação chega a 8,é baixo, fiquei com medo do medicamento por causa da glicada também ficou fora do normal 5.9,parece que tudo começou a piorar, fora a pressão arterial, deu medo. Iniciei com 2,5 mg,que me senti bem,mas minha endocrinologista falou que ainda faltava ,aumentou dose para 5 mg depois de 3 meses ,depois comecei a passar mal no passar dos meses,fiz uso contínuo quase 1 ano. Tô esperando esse novo medicamento vir para o Brasil.
Vc tem sorte de viver no usa.
Are there others with classic CAH not taking medication?
Your experience is quite unusual. Most people with classic CAH need lifelong glucocorticoid medication because their bodies don't produce enough cortisol on their own. Classic CAH typically requires daily treatment starting soon after birth and continuing throughout Show Full Answer
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